LEARN ABOUt RARE diseases from the community
As a club, we had the pleasure of speaking with multiple patients/survivors who were open to sharing their story on our platform. Each individual brought a unique and valuable perspective to how we view a rare disease and what we can take from their experience. Read below and learn with us!
"In my professional life I'm a technologist currently specializing in planning Data engineering solutions for organizations. In my private life, I am a keen cyclist that uses my holidays for cycle tourism and to write about my professional and private experiences on my blog"
Torbjorn Zetterlund
A Technologist and GBS Survivor
"I'm a 3rd year Health Sciences student (Co-op) at the University of Waterloo. I was diagnosed with GBS in 2019 and was subsequently hospitalized for 3.5 months along with outpatient rehab for 2 years. To learn more about my story, please watch the interview below."
Sara Ganem
A Health Science Student and GBS Survivor
Executive Director - GBS/CIDP Foundation of Canada
Donna Hartlen
"The Foundation is committed to ensuring that no one with GBS or CIDP suffers alone and that everyone has access to treatment. We are a foundation run by patients for patients. We are here to support and every day we are continuing to get better at what we do." - Donna (Octapharma Annual Report 2016)
"I'm a writer and certified fitness trainer, with a background in Human Resources. I'm also a mom in a blended family of five and the face behind Holly After GBS on social media, where I connect with other illness survivors. I've joined the GBS-CIDP Foundation of Canada's board of directors in January 2019. Having been diagnosed with GBS at the age of 26, I've had a passion for giving back to the GBS and CIDP community."
Holly Frances
Certified Personal Trainer and a GBS Survivor